Our History
Lifting Voices was originally conceived by co-founders Heidi Arthur and Ellen Breslin whose children’s serious mental health challenges highlighted the very issues they work to address in their professional roles as healthcare consultants advising state policymakers and community-based service providers about mental health and substance use service access and interventions for children and families. They wondered if their long, difficult journeys trying to find, access, and pay for the care their children needed was shared by others whose children also experienced suicide attempts, overdoses, and an array of interventions related to complex mental health conditions during childhood and adolescence.
In 2023, they collaborated with Sheilah Gauch, a fellow parent and therapeutic school principal and mental health advocate, to develop and conduct surveys and focus groups with a small sample of parents and their youth. They learned that their children and their families were not alone in their experience of institutions poorly prepared to identify children’s actual needs, listen to family concerns, or support access to the right services early enough to avoid longer-lasting damage and risk of death. Their children were not alone in experiencing harm from the very programs meant to help them. They also learned that there is a need for more input from parents and youth about their lived experience of the system, in order to inform vital, urgent improvements for a better and more equitable mental health system. They compiled their findings in an initial report, and began to build a broader network of advisors, supporters, parents, and youth advocates via a series of national conference presentations. Echo Lustig, a young adult with lived experience of the mental health system joined the group as an advisor and presenter. Kelsey Engelbracht, a fellow parent and marketing expert, supports the team’s messaging and communications, including designing this website and the Lifting Voices social media campaign. Courtney Thompson, a young adult with lived experience and a behavioral health care consultant, supports survey development and data analysis.
About Us
Lifting Voices represents a coalition of youth, young adult, and family voices. Our goal is to learn more from those with lived experience about mental health and substance use disorder recovery needs, barriers, what has worked, and what actionable change is needed now, in order to improve the quality of care, advance innovation, and promote equitable access for all. We seek to openly and directly combat stigma by sharing our lived experience, to establish a national methodology for mental health stakeholder engagement and input that is by and for youth who have complex mental health and substance use disorder (SUD) conditions and their families, and to gather input from a diverse array of youth and families affected by mental health and SUD conditions to inform and shape reform efforts nationwide.
5 Key
Findings
Key Findings
1. Access to Care
The right care is hard to find. More than 10 years and an average of 8-12 interventions were necessary to find the right care. More than half of families experienced a 25-50% reduction in employment.
2. Insurance
Insurance is inadequate. Effective interventions were often not covered by insurance (50-70% of costs or as little as 10%). Out-of-pocket costs, ranged from $15,000 to well over $250,000.
3. Parents
Parents reported feeling judged, blamed, frightened, and powerless that their children were going to die without getting the right care.
4. Youth
Youth reported traumatic experiences and expressed frustration that care was not more individualized and readily available. The same interventions/medications were used repeatedly, even when it was apparent it wasn’t working. Youth want mental health education to start in elementary and middle school so kids can understand their experience and get help, as they would have with any medical need.
5. Recovery
Recovery is possible. Most of the youth are now in recovery, attending/completing college.
The right care is hard to find.
-
More than 10 years and an average of 8-12 interventions were necessary to find the right care. More than half of families experienced a 25-50% reduction in employment.
Insurance is inadequate.
-
Effective interventions were often not covered by insurance (50-70% of costs or as little as 10%). Out-of-pocket costs, ranged from $15,000 to well over $250,000.
Parents reported feeling judged, blamed, frightened, and powerless.
-
They feared their children were going to die without getting the right care.
Youth reported traumatic experiences.
-
They expressed frustration that care was not more individualized and readily available. The same interventions/medications were used repeatedly, even when it was apparent it wasn’t working. Youth want mental health education to start in elementary and middle school so kids can understand their experience and get help, as they would have with any medical need.
Recovery is possible.
-
Most of the youth are now in recovery, attending/completing college.
Mother of a Child with Mental Health Needs, LMSW, Principal, Health Management Associates
Heidi Arthur has nearly 30 years of experience in delivery system redesign to promote health equity and build access to community-based health and human services. She specializes in supporting national, state, and local leaders to design, finance, and implement interventions that promote child welfare, maternal health, and child and family mental wellbeing. Her recent work has focused on developing care models for states, counties, managed care organizations and behavioral health provider networks serving children and youth, with a focus on addressing the youth behavioral health crisis, advancing 988, and improved models of care for children in foster care. Prior to joining HMA nearly a decade ago, she was the vice president of a behavioral health grant writing firm for 10 years. She also formerly held management positions for the New York City Department of Health and the New York State Office of Mental Health in support of behavioral health organizations and schools responding to the mental health impact of 9/11. She started her career in direct practice with children and families, including implementing an early Systems of Care program for women who were pregnant and parenting and then serving as a child welfare worker, a foster care worker, and providing intensive in-home therapy. She earned her Master of Social Work from the Columbia University School of Social Work, where she has also served as a field instructor and an adjunct lecturer. She is a frequent conference presenter and the co-editor and author of the book Service Delivery for Vulnerable Populations: New Directions in Behavioral Health.
(212) 575-5929
Mother of a Child with a Substance Use Disorder, MPP, Principal, Health Management Associates
Ellen Breslin, MPP, is a principal at Health Management Associates (HMA). Ellen has more than 35+ years in state and federal government, and health care consulting. She has focused the majority of her career on improving health care for persons with disabilities including those with mental health and substance use needs. She is a strategic thinker and problem-solver, dedicated to advancing health justice. She is an expert in Medicaid and Medicare policies, programs, and data. She has expertise in qualitative and quantitative research, Medicaid payment and care delivery, and stakeholder engagement. Previously, Ellen was an independent healthcare consultant, the MassHealth Director for Medicaid Managed Care Payment and Analysis, a Principal at the Congressional Budget Office, and a Budget Analyst for the Massachusetts House Ways and Means Committee. She holds a master’s degree in public policy from the Sanford School of Public Policy at Duke University. Ellen is a former Board member for the Massachusetts Disability Policy Consortium (DPC). She received an award from DPC in 2019 for her work empowering people with all disabilities in the Commonwealth. She has dedicated her career to advancing independent living (IL) and recovery goals for persons with disabilities. Ellen has presented at many conferences. She is also an author of many publicly available reports.
(617) 548-9912
Marketing and Communications Strategist, M.A. in Organizational Psychology
Kelsey is a marketing and communications specialist with extensive experience in education and health and human services. She spent over a decade working in school administration which drew her attention to critical gaps in the education system and inequities in accessing a free, appropriate education.
In 2013, she took her skills in marketing and passion for addressing barriers faced by underserved families to the behavioral health sector. Since then, she has worked as a marketing and communications professional for nonprofits serving families impacted by mental health and substance use challenges, developmental disabilities, and other needs. She has tremendous compassion for all youth and families and has the lived experience as an individual and parent of a child who experiences mental health and education challenges.
Her work with families over the years brings insight and understanding of youth and family voices. Hearing directly from families about their experiences across systems (healthcare, education, child protective services, justice) deepened her commitment to advocating for policy and system change and to the Lifting Voices initiative.
(602) 663-4984
LISW, M.Ed, Principal of Dearborn Academy, Writer for Psychology Today
Sheilah Gauch has worked with students who have complicated mental health needs for more than 20 years. She championed the passage of legislation that requires healthcare providers to cover the treatment of sick children in Massachusetts with Pediatric Acute-Onset Neuropsychiatric Syndrome and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections, conditions that have been linked to obsessive-compulsive disorder, food restriction, depression, and other behavioral changes after cases of strep and other infections. And she has blogged for Psychology Today, exploring best practices to help children with complex illnesses heal.
Youth Survivor and Mental Health Advocate
Echo Lustig (they/them) is a longtime mental health advocate, with a degree from Hampshire College in mental health policy and advocacy, as well as many years of direct lived experience in the youth and adult mental health care system, from outpatient therapy to state level institutionalization. Echo’s undergraduate thesis, titled Experiencing Policy: An Introspection on the Public Policy of Inpatient Mental Health Care for Children and Adolescents, combines personal writing and storytelling with policy analysis and concrete research-based policy proposals in a way that evokes the emotions necessary to spark change and gives recommendations for what that change might look like. Currently, Echo works at New Village, a daycare in Northampton, MA with a focus on growing the social-emotional capacities of young people, but hopes to break into the policy and advocacy workforce to help bring about the change that is so desperately needed. In their free time, Echo enjoys folk dancing, rock climbing, and taming their spunky bearded dragon, Skid Steer.
MPH, Behavioral Health Consultant
Courtney Thompson is a passionate advocate for youth mental wellness and a dedicated champion for elevating youth voices. With a strong foundation in patient care and psychology, she brings extensive expertise in Applied Behavioral Analysis (ABA) and pediatric behavioral health, particularly in emergency psychiatric and outpatient settings.
Courtney’s commitment to supporting youth is evident through her work as a pediatric behavioral health specialist at Children’s Hospital Colorado, where she provided compassionate care while promoting patient safety and well-being. Her involvement on various committees and boards reflects her dedication to driving system-level improvements for youth mental health.
With a special focus on children diagnosed with Autism Spectrum Disorder and related developmental disabilities, Courtney has honed her skills as a behavioral therapist, camp counselor, and advocate. She founded Courtney’s Camp, a therapeutic program supporting children with Snyder-Robinson Syndrome, fostering a space for growth and connection through collaboration with occupational, physical, and music therapists, as well as medical providers.
Courtney holds a Master of Science in Public Health from Grand Canyon University and a bachelor’s degree in Psychology from Virginia Commonwealth University. She is an avid traveler, having lived on three continents, and she brings a global perspective to her work advocating for youth and their families.
Core Team
Meet the Lifting Voices team and learn more about their expertise and lived experience.
Heidi Arthur
LMSW, Principal, Health Management Associates
Heidi Arthur has nearly 30 years of experience in delivery system redesign to promote health equity and build access to community-based health and human services. She specializes in supporting national, state, and local leaders to design, finance, and implement interventions that promote child welfare, maternal health, and child and family mental wellbeing. Her recent work has focused on developing care models for states, counties, managed care organizations and behavioral health provider networks serving children and youth, with a focus on addressing the youth behavioral health crisis, advancing 988, and improved models of care for children in foster care. Prior to joining HMA nearly a decade ago, she was the vice president of a behavioral health grant writing firm for 10 years. She also formerly held management positions for the New York City Department of Health and the New York State Office of Mental Health in support of behavioral health organizations and schools responding to the mental health impact of 9/11. She started her career in direct practice with children and families, including implementing an early Systems of Care program for women who were pregnant and parenting and then serving as a child welfare worker, a foster care worker, and providing intensive in-home therapy. She earned her Master of Social Work from the Columbia University School of Social Work, where she has also served as a field instructor and an adjunct lecturer. She is a frequent conference presenter and the co-editor and author of the book Service Delivery for Vulnerable Populations: New Directions in Behavioral Health.
(212) 575-5929
Ellen Breslin
Principal, Health Management Associates
A seasoned consultant, Ellen Breslin draws upon her nearly 30 years of experience and expertise in health policy, with a commitment to payment and delivery reform and to improving outcomes for persons with disabilities.
As an independent consultant for nearly 10 years, Ellen provided extensive financing and policy expertise to an array of clients including states, health plans, and providers on major state and federal payment and delivery reforms including the Medicare-Medicaid Capitated Financial Alignment Initiative. Her portfolio of work also includes development of the financing model for a State Innovation Models (SIM) Initiative grant applicant, and creation of the state-required funds flow model for a New York organization as part of the Delivery System Reform Incentive Payment (DSRIP) Program.
Previously, she spent nearly two decades of her career in health policy positions for state and federal government with a focus on helping to improve access and care for persons with disabilities. At the state level, Ellen was the first director of managed care reimbursement and analysis for MassHealth, the Massachusetts Medicaid program. At the federal level, Ellen was a principal analyst for the U.S. Congressional Budget Office, where she worked on national health care reform and wrote analytic reports and testimony for Congress.
She is the co-author of several publicly available reports for the Massachusetts Center for Health Information and Analysis (CHIA), the Massachusetts Medicaid Policy Institute (MMPI), the Massachusetts Disability Policy Consortium and the Mongan Institute for Health Policy, the Association for Community Affiliated Plans (ACAP), and Community Catalyst.
(212) 575-5929
Sheila Gauch
LISW, M.Ed, Principal of Dearborn Academy, Writer for Psychology Today
Sheilah Gauch has worked with students who have complicated mental health needs for more than 20 years. She championed the passage of legislation that requires healthcare providers to cover the treatment of sick children in Massachusetts with Pediatric Acute-Onset Neuropsychiatric Syndrome and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections, conditions that have been linked to obsessive-compulsive disorder, food restriction, depression, and other behavioral changes after cases of strep and other infections. And she has blogged for Psychology Today, exploring best practices to help children with complex illnesses heal.
Coming soon.
Coming soon.
Kelsey Engelbracht
Marketing and Communications Strategist, M.A. in Organizational Psychology,
Kelsey is a marketing and communications specialist with extensive experience in education and health and human services. She spent the over a decade working in school administration which drew her attention to critical gaps in the education system and inequities in accessing a free, appropriate education.
In 2013, she took her skills in marketing and passion for addressing barriers faced by underserved families to the behavioral health sector. Since then, she has worked as a marketing and communications professional for nonprofits serving families impacted by mental health and substance use challenges, developmental disabilities, and other needs. She has tremendous compassion for all youth and families and has the lived experience as an individual and parent of a child who experiences mental health and education challenges.
Her work with families over the years brings insight and understanding of youth and family voices. Hearing directly from families about their experiences across systems (healthcare, education, child protective services, justice) deepened her commitment to advocating for policy and system change and to the Lifting Voices initiative.
(602) 663-4984
Echo Lustig
Youth Survivor and Mental Health Advocate
Echo Lustig (they/them) is a longtime mental health advocate, with a degree from Hampshire College in mental health policy and advocacy, as well as many years of direct lived experience in the youth and adult mental health care system, from outpatient therapy to state level institutionalization. Echo’s undergraduate thesis, titled Experiencing Policy: An Introspection on the Public Policy of Inpatient Mental Health Care for Children and Adolescents, combines personal writing and storytelling with policy analysis and concrete research-based policy proposals in a way that evokes the emotions necessary to spark change and gives recommendations for what that change might look like. Currently, Echo works at New Village, a daycare in Northampton, MA with a focus on growing the social-emotional capacities of young people, but hopes to break into the policy and advocacy workforce to help bring about the change that is so desperately needed. In their free time, Echo enjoys folk dancing, rock climbing, and taming their spunky bearded dragon, Skid Steer.
Coming soon.
Coming soon.
Courtney Thompson
MPH, Behavioral Health Consultant
With a background in patient care and psychology, Courtney Thompson has expertise and experience providing Applied Behavioral Analysis (ABA) and services to pediatric patients in emergency psychiatric departments and outpatient settings.
Courtney served as a pediatric behavioral health specialist with Children’s Hospital of Colorado/Bloomfield where she was responsible for direct patient care and safety including supervision and management of children and adolescents. She also served on several committees and boards to develop protocol and connect with stakeholders.
She has a significant amount of experience with those diagnosed with Autism Spectrum Disorder and ABA therapies and previously served as a behavioral therapist and camp counselor providing clinical skills instruction and behavior reduction protocols to children with Autism and related developmental disabilities. She also has experience as a behavioral and ABA therapist in a clinical setting.
Courtney is the founder of Courtney’s Camp, where she and other occupational, physical, and music therapists and medical providers support children who have been diagnosed with Snyder-Robinson Syndrome, an extremely rare disease, by creating a therapeutic camp environment.
She earned a Master of Science in public health and clinical mental health counseling from Grand Canyon University and bachelor’s degree in psychology from Virginia Commonwealth University.
Courtney loves to travel and has lived on three continents (North America, Asia, and Europe).
Coming soon.
Coming soon.